From 22 to 29 November 2021: 20% of your online purchases on filigranes.be with the promo code "101 GENOMES" will be donated to Fondation 101 Génomes! As part of this action, we have asked the main people involved in the Fondation 101 Génomes adventure to recommend a book. Here are their suggestions: 1. Prof. Guillaume Smits (ERASME) [...]

ONLINE ACTION: From 22 to 29 November 2021: 20% of your online purchases on filigranes.be with the promo code "101 GENOMES" are donated to Fondation 101 Génomes! Order now online on filigranes.be with the promo code "101 GENOMES" the books, comics, toys, wines, cosmetics, etc. that you will offer to the [...]

On 29 November 2021 from 8 to 11 pm, Marc Filipson will open the doors of Filigranes at Fondation 101 Génomes (F101G) in the presence of Philippe Geluck, Fred Jannin, Gilles Dal and many other authors. During this evening, 20% of the amount of the purchases as well as the totality of the receipts of the bar will be donated [...]

On 10 November 2021, RaDiOrg, the Belgian rare disease alliance, honoured individuals and organisations active in the field of rare diseases with the Edelweiss Awards. The Edelweiss Award ceremony is an important day that highlights the exceptional work that many people do behind the scenes and in the field of rare diseases.

For four months, the Fondation 101 Génomes (F101G) benefited from the help of three young computer scientists who came to develop a new concept as part of an internship organised by the mic.brussels (My innovation center.Brussels). The mic.brussels collaborates with the Brussels computer schools from which it selects the best profiles each year to take part in its training programme.

Professor Sandy Tubeuf from UCL is conducting a 'Survey on Diagnostic Errancy in Rare Diseases in Belgium'. Fondation 101 Génomes fully supports this research. She hopes that her findings will help to identify solutions to reduce the duration of the terrible diagnosis wandering. Concretely, Ludivine participated in the realisation of the questionnaire [...]

With the 'I'm not a unicorn' campaign, RaDiOrg reminds us that, even though they are often invisible, rare disease patients really do exist...unlike unicorns. This national campaign is being carried out for the first time for the benefit of the 8 Belgian rare disease hospitals. Find out what is at stake, what are its objectives and how the campaign will be implemented.

At the origin of Fondation 101 Génomes, there is the birth of Aurélien, who suffers from a rare form of a rare disease. Since Aurélien's birth and the announcement of his diagnosis, we have already come a long way together. Along the way, we have come across other children with Marfan syndrome and their families. […]

Fondation 101 Génomes is now a philanthropic organization recognized by Facebook! As a first consequence, the F101G's Facebook page now includes a new button that allows you to make donations via Facebook in just a few clicks! Second consequence, you can now organize your own fundraising campaigns to benefit F101G.

Dear all, We are leaving behind a particularly bleak year 2020 to start a year 2021 full of promises, especially for the 101 Genomes Foundation (F101G) and the fight against Marfan syndrome since: The co-president of the scientific committee of the F101G, Professor Bart Loeys, was recently honoured with the Belgian "Nobel Prize", the Nobel Prize for [...]

In collaboration with Microsoft, the MIC "My Innovation Center" in Brussels has decided to help Fondation 101 Génomes to progress in the implementation of its hosting and sharing solution for genomic data by providing three computer scientists during the first half of 2021... ... and a fantastic family is putting at our disposal a [...].