" The genome is you, it's me " by Bruno Fonteyn, attorney-at-law


Capsule, 2018

1. Can you introduce yourself? My name is Bruno Fonteyn. I'm active in health law. I'm mainly involved in monitoring clinical research, biobanks and that sort of thing. I've been working as a lawyer for about ten years now, and a few years before that I was a member of the National Council of the Medical Association. […]

June 8, 2018

"The objective of the F101G is fully in line with the objectives and missions of the King Baudouin Foundation" by Patricia Lanssiers


Capsule, 2018

1. Can you introduce yourself? I am Patricia Lanssiers and I work at the King Baudouin Foundation. 2. Why do you support the Marfan Genome 101 Project at Fondation 101 Génomes ? The King Baudouin Foundation is a public utility foundation serving the general interest that works on different areas, for example, a poverty area, a [...]

June 8, 2018

"There is a need to establish a legal framework that fits as well as possible with research activities" by Michael Lognoul


Capsule, 2018

1. can you introduce yourself? My name is Michael Lognoul. I am a researcher at the Research Centre for information, law and societies at the Faculty of law of the University of Namur. I started a PhD recently and I am an Assistant in topics that deal with information law, computer science and the Internet. 2. Why do you support [...]

June 8, 2018

"How to become an expert among experts: the example of Fondation 101 Génomes by Fanny Duysens


2018

The projects of the Fondation 101 Génomes are not trivial. A genome that decodes itself, the evils that are called, the diseases that define themselves, the treatments that develop... And then patients, relatives, scientists, doctors, or even philanthropists dialoguing around the same table, animated by hopes, goals, [...]

October 18, 2018

"Genetic diseases are not invincible" by Peter O'Donnell and Alisa Herrero


2018

Genetic diseases are not invincible Every day, the scientific community is discovering new approaches to combat congenital diseases. A Belgian initiative is being set up to develop an innovative approach that will make a major contribution to this goal. Until recently, people suffering from a genetic disease could not do much more than they could do [...].

October 18, 2018

"A Citizen's Dialogue on the Genome" by Gerrit Rauws (FRB)


2018

1. Can you introduce yourself? My name is Gerrit Rauws. I'm Director of the Health Programme at the King Baudouin Foundation. We help philanthropists achieve their goals and projects for the common good. In addition, we also develop projects to improve health care and the quality of life of the people who live in the area...

October 18, 2018