Dear supporters, We are delighted to invite you to the Lyric Concert that will take place on Saturday, October 19, 2019 at 7:30 p.m. rue des Jambes, 15 à 1420 Braine-l'Alleud (Parking: Q-Park, Rue Fortemps at 1420 Braine-l'Alleud). This concert is organized by the director of the Aurélien school, Mrs Hélène Nabokoff and her husband, Mr Alexis Greindl. […]
ABSM 20th anniversary gala (Part 1/2) (Photo credits: Christophe Danaux | www.birdy.photo | birdy@christophedanaux.be | birdy@christophedanaux.be) ABSM 20th anniversary gala (Part 2/2) (Photo credits: Fabien Chevigne | fabien_chevigne@hotmail.fr)
The Gala for the 20th anniversary of the Belgian Association of Marfan Syndrome (ABSM) ended in apotheosis with a performance of Sergeï Rachmaninov by Mrs Olga Dubois and Mr Gabriel Diaconu in the beautiful Marble Gallery of the Palais des Académies. Together, they interpreted 4 pieces: 1) Сирень / Siren / Lilac [...]
Mrs. Yvonne JOUSTEN and Mr. Léon BRANDT " ABSM is 20 years old! "Prof. Anne DE PAEPE " ABSM, 20 years of research support " Prof. Julie DE BACKER " The long road to precision medicine for the MFS " Ludivine VERBOOGEN and Romain ROMAN " The ABSM is 20 years old !
Dear all, Thanks to you, the Anniversary Gala Day of the Belgian Marfan Syndrome Association on 5 October 2019 was a great success! Success in terms of attendance, donations, quality of interventions but especially in terms of emotions and sharing. You will be able to (re)live this day by following this [...]
Dear supporters, We are delighted to invite you to the Gala that will take place on Saturday 5 October 2019 from 1.30 p.m. at the Palais des Académies (Rue Ducale 1, 1000 Brussels) on the occasion of the 20th anniversary of the Belgian Marfan Syndrome Association (BMSA). The ABSM has decided to associate us closely with this event.
On May 5, 2019, 45 runners participated in the 10km of Uccle to support the action of Fondation 101 Génomes. For the second consecutive year, the F101G took part in the 12th edition of the Uccle 10km, a friendly and family run that starts in the beautiful Wolvendaele park. This year 45 runners took part in the race.
On March 14th, more than 130 spectators attended the Tartine à Lasne, a theatrical improvisation show by the Motamo company organised to benefit the F101G. Vincent Verboogen, Ludivine's brother, organized a theatrical improvisation show to benefit Fondation 101 Génomes. This show was given in Lasne (France) and [...]
Dear All, a huge thank you for your participation of yesterday in the 10k of Uccle with the F101G! It was a great first for us and you made it a success: it was a memorable day full of joy to live, energy and pleasure to be together. It feels good! Running with us, you have contributed to [...]
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