At the request of the Association Française des Syndromes de Marfan et Apparentés(AssoMarfans), Ludivine has recorded a video and we are organizing various webinar sessions to help people who wish to join the GEMS study(https://www.101gems.be/site). Here is the e-mail sent by AssoMarfans to its members:

Advance Marfan syndrome research from the comfort of your home!

All you have to do is watch the video below, and if you still have questions, sign up for a webinar.

Would you like to take part in the search for modifier genes to advance research into Marfan syndrome by joining the GEMS study, but don’t know how?

In collaboration with 101 Génomes, the Marfans Association invites you to take part in a webinar during which Romain or Ludivine will guide you through the various stages of the process of joining GEMS research.

During this GEMS webinar, you’ll be able to see first-hand the steps involved and ask any questions you may have about the process of joining GEMS.

How can you register for this free webinar? By clicking on the link for the session that suits you best:

• Wednesday, June 7, 2023 (7-8pm): https: //events.teams.microsoft.com/event/a42be359-6ac0-4631-8250-277418cf152e@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f
• Saturday, June 10, 2023 (2pm-3pm): https: //events.teams.microsoft.com/event/2fbf484b-3c3d-49f9-9ff2-a040be813d6b@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f
• Sunday, June 18, 2023 (2pm-3pm): https: //events.teams.microsoft.com/event/ac29ab4d-6c6d-4eb9-948b-7f00d78777b2@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f
• Monday, June 19, 2023 (7-8pm): https: //events.teams.microsoft.com/event/9a300a2e-577e-4446-9caf-c591280ffad4@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f
• Thursday, June 29, 2023 (7-8pm): https: //events.teams.microsoft.com/event/cccb25f5-dcd0-4c35-99f3-c3c5de03b524@9f8bd359-46e4-49c7-a8fd-5a7f70907e9f

We hope that many of you will take part in this very promising research project.

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