"Hope makes our heart beat marfan" Lauriane Janssen (9 May 1986- 20 November 2019)


2019 / Thursday, November 21st, 2019
Lauriane Janssen died last night at the age of 33.
 
Lauriane was a brilliant Belgian researcher who pursued her career at the University of Oulu in Finland.
 
Lauriane had Marfan syndrome and was on the front line of the fight against this disease.
 
She provided a quarterly review of scientific publications related to Marfan Syndrome for the journal "Le Coeur et la main", which was eagerly awaited by specialists.
 
She was a member of the Board of Directors of the Belgian Marfan Syndrome Association, President of the Marfan Europe Network and was an active contributor to the F101G's 101 Marfan Genomes project (You will read here after what she expected from this project).
 
Lauriane's rigour, intelligence, finesse, humanity and humour will be terribly missed.
 
We extend our deepest condolences to his family and loved ones.
 
 
 
 

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