On 28 September 2020, Romain participated in the international online summit organized by the American Marfan Foundation: "E³ Summit".
The summit took place online from 25 August to 12 September 2020 and was a great success, with more than 2,810 participants from 75 countries.
The various presentations given by healthcare professionals and patient representatives from around the world covered a wide variety of topics on Marfan Syndrome and related diseases.
Romain was delighted and honoured to be invited to participate in this important and innovative event to which he had been invited as a representative of the MASB, a member of the VASCERN ePAG HTAD.
Romain's intervention focused on accompanying children with Marfan syndrome diagnosed during their first year of life.
The text of Romain's presentation is available here:
And you can watch the presentation 10 minutes after the start of the streaming below (or directly via this link: https://youtu.be/osg42otUyH4?t=610)
You will find all the information about this summit and links to the other presentations on the VASCERN website: https://vascern.eu/success-of-the-first-ever-international-e3-summit/
