On September 28, 2020, Romain took part in the international summit organized online by the American Marfan Foundation: “E³ Summit”.

The summit took place online from August 25 to September 12, 2020, and was a great success, bringing together over 2,810 participants from 75 countries.

The various presentations given by healthcare professionals and patient representatives from all over the world covered a wide range of topics on Marfan syndrome and related diseases.

Romain was delighted and honored to be invited to take part in this important and innovative event, to which he had been invited as a representative of ABSM, a member of VASCERN’s ePAG HTAD.

Romain’s talk focused on support for children diagnosed with Marfan syndrome during their first year of life.

The text of Romain’s presentation is available here:

And you can watch the presentation 10 minutes after the start of the stream below (or directly via this link: https://youtu.be/osg42otUyH4?t=610)

 [embedyt] https://www.youtube.com/watch?v=osg42otUyH4[/embedyt]

You can find all the information about this summit and links to other presentations on the VASCERN website: https: //vascern.eu/success-of-the-first-ever-international-e3-summit/